Articles from a national newsletter for parents, educators and behaviour management specialists about Attention Deficit Hyperactivity Disorder (ADHD) and related topics.
Edited by Sue Dengate, published from 1993-1999, mailed to up to 800 individuals and organisations
(Note that the material below is an archived version and that, although complete, it contains some repeats from when it was printed for distribution.)
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An Order in the House! feature
A calm approach to oppositional teenagers
Psychiatric nurse Eben Assan knows about difficult teenagers. Eben works at a mental health facility in Melbourne
, where sixty percent of all referrals have behaviour problems. It is the 20 to 30 per cent with serious behaviour problems who reach Eben, and his approach was developed "as a result of desperation to find a way of firstly, engaging the group and also doing some work with them". We all know from 1,2,3 - Magic that there are two main reasons for discipline not working.1) losing temper and
2) raising voice.
Eben's approach avoids both of these.
Introduction
Conduct disorder is the second most common form of psychopathology, after depression, affecting about 9% of males and 2% of females under 18, and accounting for about 50% of the work in child and adolescent facilities. [See article on p4 for more about conduct disorder.] About 30-40% of those referred to the service fail to attend. Of those who stay in the service, about 22% drop out.
First, understand what makes them tick
Teenagers with CD feel as if they are playing to an imaginary audience. Everything they do is for display because they feel that everyone is looking at them. They feel powerful because "my parents have given up on me, they can't stop me; I can tell the teachers where to go; I can do anything I want and I won't go to prison". The more people look at them, the more powerful they feel, the more they act to the audience ... and so on.
Use a calm approach
• Capture
This involves engaging and being engaged. You cannot force these teenagers to do anything. They have to ask. When you first meet them, talk about yourself. You might be able to engage them by revealing something of yourself, showing you are human, telling a story about your interests outside teaching, for example. In effect, you are saying: "I'm like you. I do other things outside school, I like some things that you like". These kids complain that teachers have too much power and push them around. Teachers are seen as authority figures who need to be brought down. If they see you as being just like them, then they don't need to bring you down.
• Acceptance
Establish a relationship. You have to demonstrate, "I take you as you are". Be genuinely interested in them. If they want to talk about selling drugs or stealing a car, listen and ask interested questions.
•Prepare for the unexpected.
Maybe this won't work. If it does, reward them for persistence.
• Be truthful
to them and yourself. Everyone else has failed them, so why do you think you can succeed? Sell yourself as unique.
• Be realistic
Don't pick on minor things like swearing. although you can make a personal statement, for example, "I personally don't like swearing because it doesn't add anything more to what you are saying". They won't respond to an order if they don't know you. You must be prepared to back down. Know your limits. You must be genuinely interested in working with these kids. Working with teenagers like this can be exhausting. In schools, a system like this will work best if it is adopted by the whole school.
•Always, be calm.
From "Challenging the challenge - a calm approach: working with adolescents with challenging behaviours" presented by Eben Assam at the 1998 Child and Adolescent Mental Health Conference.
Education
Unspeeded examinations
Provisions for learning disabled students such as coloured paper, larger font, or readers would generally not benefit non-disabled students. The one provision which is most requested and is most likely to been seen to advantage disabled students is extra time.
Extra time by itself is considered less useful for students with learning disabilities than the use of reader/writers, but this issue is worth considering because the concept of unspeeded examinations is firmly supported by research and would avoid 'unfair' claims.
The term unspeeded refers to examinations which avoid time pressure by providing more time than is needed for all examinees to complete the questions, for example, if most students are likely to finish in two hours, then three hours are allocated.
Traditionally, time limits for examinations are used for administrative convenience even though a test of knowledge and achievement rather than speed is usually the aim of the examination.
Comprehensive research about alternative assessment methods has been carried out by Willingham and co-workers at the University of Princeton in New Jersey, who found that increasing the speed of tests significantly reduces the validity of the scores of hearing impaired, learning disabled, physically disabled and visually impaired students.
They concluded that double the amount of testing time was a generally appropriate time limit for most disability groups, with blind examinees requiring nearly three times the testing time. This is far more than the 5 to 10 minutes per hour sometimes permitted in Australian schools.
Students with learning disabilities are more likely to benefit from a reader/writer than from extra time. However, learning disabled students who will benefit from unspeeded examinations include those who:
• refuse to use a reader/writer ('a shame job')
• have the common problem of handwriting difficulties (speed of handwriting is directly correlated with success in exams)
• fail to apply for examination provisions through lack of information, will all benefit from unspeeded examinations.
Non-disabled students are also relieved of intense time pressure and have the opportunity to display their knowledge and achievement so there are no grounds for complaints of disadvantage.
Research would be needed to set reasonable guidelines, for example, time needed for an essay of a specific word count.
- from a paper about special examination provisions presented by Sue Dengate to the ACACA conference in July 1998. Thanks to John Cook from the NSW Board of Studies. Further reading - Parr, P., Levi, N. and Jacka, K. Unspeeded Examinations: An equitable and practical method of assessment, University of Western Sydney, 1996, available from the LD Coalition office, phone 02 9540 3300
Drugs
Marijuana and psychosis
A link between regular cannabis use and psychosis was recently established by the University of Melbourne's Early Prevention and Intervention Centre (EPIC). The Centre has conducted a series of world-first studies on young people aged 16 to 30 who have used cannabis and had an episode of psychosis.
There is a strong suggestion that young persons who continue to use cannabis once they have had an initial episode of psychosis are more likely to have another episode", says Dr Jane Edwards, deputy director of EPIC. She says that for young people at risk of psychosis, "any use of cannabis is potentially problematic."
The finding support a 1996 study by German professor Dr Martin Hembrecht, which found that a third of those surveyed began using substances in a problematic way before the onset of any psschotic symptoms, while seveon ouyt of 10 started using them after the onset of psychotic symptoms.
From WE Australian, Sept 12-13, p29. For a heartwrenching account of her son's marijuana-induced psychosis, schizophrenia and ultimate suicide, read Anne Deveson's book Tell me I'm Here, Penguin, 1991.
In this issue
Medication
Buspirone
Behaviour
Oppositional teenagers
ODD
CD
Adults
Five more management tips
Education
Reading program
Research
Diet and crime
New Medical Advisory Board
Diet
Review of studies 1985-1995
Editorial
When I was invited to attend the Child and Adolescent Mental Health Conference in Sydney, thanks to the NSW Department of Health, I thought most of it would be irrelevant to my ADHD interests. I was wrong! See report, back page, and the front page story.
Behaviour problems are the most distressing all the features which can be associated with ADD, so we've continued the theme on page 1 with articles on oppositional defiance and conduct disorder. Experts differ in their recommendations, behaviour management p0, and medication, p0, diet p0.
This newsletter has long supported dietary management as part of multi-modal treatment of ADHD, sometimes in the face of strong criticism. I have been stunned by the response to my latest book, Fed Up. The first print run of 6000 copies sold out in 8 weeks. We mothers know that some foods affect our children. Now it appears that mainstream opinion leaders including a new book by US psychiatrist John Ratey, a new US medical advisory board (p0), and research (p0 and p0) are catching up with us.
- Sue Dengate, editor
In brief
Increase in mental disorders
Mental illnesses will replace infections and malnutrition as one of the leading causes of disability and premature death early next century, according to a World Health Organisation study. Completed over the last six years, it determines health trends into the next century. What has surprised researchers is the expected rise in neuro-psychiatric conditions including panic disorder and schizophrenia, which appear to have been seriously under-estimated by medical researchers. "While psychiatric conditions are responsible for little more than 1 percent of deaths, they account for almost 11 per cent of disease burden world-wide", the authors say. The study predicts that depression will change from its current fourth ranked cause of disability and premature deaths worldwide to become second by 2020. - Murray & Lopex, 'The Global Burden of Disease', World Health Organisation, 1998.
Dyslexia with numbers
People with dycalculia struggle have difficulty understanding 'manyness'. A new test assesses their dyscalculia by asking how many dots in a visual display. Most people could instantly put a number to a group of three dots, for example on dice, but dycalculics seem to resort to counting. The tests also ask which of two numbers is larger because dyscalculics find this very hard.
- New Scientist, 12 Sept 1998, p21
Intellectual dysfunction
Throughout the world, up to 3 per cent of any community are considered to have an intellectual disability, but in some regions, levels now approach 20 per cent. This is often paralleled by a much greater incidence of milder, 'sub-clinical' intellectual dysfunction. In some African cities more than 90 per cent of children now have blood lead levels than can cause intellectual problems. The reason is the presence of environmental agents that destroy intellectual potential, such as heavy metals or radiation, and the absence of nutrients necessary for the proper development of the brain, such as iodine or iron. There are also synergisms between the two. For example, iron deficiency can speed up the body's uptake of lead.
- from "Terminus Brain: The environmental threats to human intelligence" by Dr Christopher Williams, Cassell, 1998
Mood disorders
Out of 100,000 adolescents, two to three thousand will have mood disorders out of which 8-10 commit suicide. - Kids Helpline newsletter, June 1998
Health benefit of hugs
Embracing and other physical contact such as touch or hugging can help lower blood pressure and cholesterol, regulate heartbeat, strenghten the immune system and even lull hyperactive children, claims the American Hugs for Health Foundation. The foundation offers this prescription for a healthier and happier life - four hugs a day for survival, eight for maintenance and 12 for growth.
Prenatal PCBs cause attention deficits
About 2000 people were poisoned by cooking oil contaminated by polychlorinated biphenyls (PCSs) and dibenzofurans in Taiwan in 1979. These chemicals persist in human tissue and children born to exposed mothers well after the event were affected through transplacental exposure and breast milk. They suffered a permanent five-point IQ decline, attention deficits, developmental delay, behavioural problems and a range of other adverse effects.
- Science, 1998, vol 241, p334.
Behaviour
How to treat behaviour disorders
The following articles are based on a feature about disruptive behaviour disorders by Dr Joseph M Rey, director of the Rivendell Unit, Central Sydney Area Health Services and clinical professor, department of psychological medicine, University of Sydney, which appeared in Australian Doctor, 4 September 1998, pages II and VI.
Oppositional Defiant Disorder
The main features of this disorder are:
• irritability
• non-compliance
• defiance
Oppositional behaviour is interactional and does not manifest itself in all situations, for example, if the adolescent is not frustrated. ODD adolescents seldom carry out serious antisocial or delinquent acts (such as stealing or truance) and their conduct can be normal in some situations (for example, at school, in social situations).
Individual counselling is seldom useful because these youngsters do not believe there is anything wrong with them. They resent being taken to counselling and, if forced, this can create new problems.
Medication does not have a place in treating oppositional disorder unless oppositionality is present at the same times as other disorders (such as ADHD) or if oppositionality is the manifestation of another condition such as depression.
"oppositional behaviour is interactional and does not manifest itself in all situations, for example, if the adolescent is not frustrated"
Dr Rey suggests that the basic treatment should take place in the family context. Parent management training has been shown to be effective. In this approach, therapists educate the parents on techniques for handling the adolescent's oppositionality and defiance.
Several points should be kept in mind when dealing with oppositional defiance.
• Parents need to learn to give children several choices rather than just telling them to do something, These young people need to feel they have control over what they do. Involving them in decision-making may achieve this.
• Some adolescents become oppositional if they feel their parents are too intrusive or unnecessarily controlling. Giving young people personal space may avoid some of these problems. Adolescents need privacy and emotional elbow room.
• Parents need to identify important issues compared to matters which are trivial and not worth the fuss. Parents are sometimes afraid that if they give in their child will get out of control and walk all over them. They can end up nagging, saying no all the time, or trying to set even more limits and controls. Therapists can help parents identify what is really worth a fight and what is not.
• Some parents may just give in and think their child is too strong-willed for them. This can happen easily in single-parent families. Change is difficult and requires time. Parents need to be advised about ways of gradually setting boundaries between them and the children and taking charge of the situation.
• Remember, adolescence is a preparation for adulthood. Teenagers need to have an increasing degree of freedom and responsibility.
• Dead-end discussions about good and bad behaviour are not useful and lead nowhere. Limits are more acceptable when expressed in terms of safety rather than bad behaviour: eg. "It is too dangerous for your to travel on your own at night. I am happy for you to go to the movies but I need to be sure you are safe. I can pick you up or you can come home earlier."
A negative, angry pattern of interactions (arguments, screaming, prohibitions) can become almost the only way in which parents and child relate. They bring out the worst in each other.
Parents need advice on how to break that cycle by finding areas of common interest for them and their child (for example, a father may invite his son to got fishing with him and discover his son enjoys it. This can provide position warm and enjoyable experience shared by both on which change may be built.
Conduct Disorder
Conduct disorder describes a pattern of behaviour characterised by:
• breaking rules
• deceit
• lack of respect for the rights of others.
Adolescents with this disorder also have constant conflict with parents, teachers, peers and society as a whole. Although a high proportion of juvenile delinquents have conduct disorder, isolated antisocial acts do not warrant this diagnosis.
Course and prognosis
It is widely accepted that conduct disorder is often the result of a poor family environment. Parental neglect, inconsistency, physical or sexual abuse, harsh discipline, poor supervision etc are all associated with this condition.
Genetic factors (for example, antisocial personality in parents), low intelligence, a difficult temperament the child and the presence of ADHD also increase the risk.
About one-third of adolescents with conduct disorder will grow up to have an antisocial personality. Overall, the earlier the onset of antisocial conduct (for example, before the age of 10) or the greater the number and variety of antisocial behaviours, the more likely it is that problems will persist into adulthood.
Predictors of a better adult outcome include
• above-average intelligence
• absence of a learning problem
• having a caring, affectionate relationship with at least one adult
• having friends who don't get into trouble
• experiencing achievement in some activities (for example, sports)
• later onset of symptoms (in adolescence)
• no other mental disorders present (such as ADHD, depression)
• remaining at school until the age of compulsory schooling or longer
Treatment
Dr Rey suggests that many treatments produce short-term relief of symptoms but none of the therapies available is particularly effective in the longer term. Improvements usually wear off quickly.
Once the bad habits of conduct disorder are established they become resistant to change. Individual counselling is difficult and ineffective in many cases because these young people lack remorse and believe they have done nothing wrong.
They are not used to receiving sympathy from adults and often react by refusing it or by being angry with the counsellor or may attend therapy to avoid a more unpleasant consequences.
The more promising treatments are problem-solving skills training, parent management training, functional family therapy and multisystemic therapy.
A close working partnership between the family and therapist offers the best chance of success. This needs to continue for a lengthy period of time.
On some occasions, treatment can be done while the child is at home, but because of the severity of the difficulties or because parents are unable to set consistent limits on the child's behaviour the youngster may need to be placed in a residential setting..
Facilities with a small number of children at any one time and that can offer treatment for a substantial period, for example, longer than one year, are likely to produce the best results. There are few services that provide this.
The best way of dealing with conduct disorder is by preventing its development. It is essential that parents, teachers and doctors identify the early signs and treat them persistently to prevent the development of conduct disorder. The most useful intervention at that stage is teaching parents to be more caring, effective and consistent in their parenting.
Medication
New drug for ODD
Children with ADHD often have comorbid ODD. Sometimes, medication for ADHD does not help with the ODD. The children behave as long as everything goes their way, but with frustration, or a refusal of some request, there will be a major temper outburst and defiance.
In an open trial, 50 children whose ADHD was treated by standard medications but whose ODD remained a major problem were also treated with Buspirone, an antianxiety agent, for a minimum of 6 months up to 2½ years. Dosage varied from 15 to 60 mg/day. Two children were dropped from the study because of side effects. Of the remaining 48 children, 4 showed no improvement, 4 were mildly improved, 17 were moderately improved, 15 showed excellent improvement and 8 were rated as outstandingly improved. Ratings were made by parents, since ODD symptoms were much more prevalent with family than at school.
- from a letter by Dr MD Gross of Chicago Medical School to the Editor published in J Am Acad Child Adolesc Psychiatry, (1995) vol 34, no 10, p1260.
Conduct disorder and diet
The Shipley Project
British policeman Peter Bennett first made headlines when he gave a teenager the choice of going to prison or changing his diet. The teenager chose diet and later said,"I feel better, I sleep better, I enjoy myself, I don't get into arguments now, I don't want to go back to my old life." When Superintendent Bennett was put in charge of a division, he asked his youth aid officer to find him the worst young criminals in the district. They were chronic offenders - their average arrest rate was more than once a month. All were hyperactive and some were violent. Their offences included violence, criminal damage, theft, indecency, arson, and solvent/alcohol abuse. The results of their trial of diet have just been published:
Nine children (one girl) aged 7-16 with persistent anti-social, disruptive and/or criminal behaviours were recruited through police records to try a comprehensive elimination diet.
The children remained at home in the care of their parents while following a restricted diet. The health and behaviour of all nine children improved.
Although parents were advised to minimise temptation from visible food for other family members, only one mother used the diet with the whole family - and the husband's debilitating panic attacks improved.
Two brothers and their fellow gang member abandoned the diet, two of whom re-offended and were placed in care while the third moved home and accepted enzyme-potentiated desensitization (EPD) treatment. Altogether four children used EPD treatment, all of whom were then able to tolerate previously reactive foods. Seven children continued to improve in health, behaviour and school performance over 6 months. In the following 18 months, two more re-offended but with much reduced frequency and violence than before the project. After 2 years, five of the nine subjects had not re-offended. Researchers concluded, "the [dietary] approach appears to work within an ethical, efficient, effective, economical and preventative paradigm without harm".
Further reading: Bennett CPW and others, 'The Shipley Project: treating food allergy to prevent criminal behaviour in community settings', J Nutr & Environmental Med, (1998), 8, 77-83
Adults
Five more tips for adults with ADHD
6. Educate and involve others. Just as it is key for you to understand ADD, it equally if not more important for those around you to understand it--family, job, school, friends. Once they get the concept they will be able to understand you much better and to help you as well. 7. Give up guilt over high-stimulus-seeking behavior. Understand that you are drawn to high stimuli. Try to choose them wisely, rather than brooding over the "bad" ones.
8. Listen to feedback from trusted others. Adults (and children, too) with ADD are notoriously poor self-observers. They use a lot of what can appear to be denial.
9. Consider joining or starting a support group. Much of the most useful information about ADD has not yet found its way into books but remains stored in the minds of the people who have ADD. In groups this information can come out. Plus, groups are really helpful in giving the kind of support that is so badly needed.
10. Try to get rid of the negativity that may have infested your system if you have lived for years without knowing what you had was ADD.
- from Fifty tips for ADD adults on the internet by Drs EM Hallowell and JR Ratey, two US psychiatrists with ADHD. Authors of Driven to Distraction and Answers to Distraction, available from Silvereye Educational Publications, phone 02 4987 3457, email:silvereye.hunterlink.net.au
Self-medication
Alcohol and drugs
Nearly half of all Australian women who abuse substances have a mental disorder, as do a quarter of males aged 18-34, according to the National Survey of Mental Health and Well-Being. More than 10 percent of those surveyed in the 18-34 age group had a an alcohol abuse disorder and almost 5 per cent abuse drugs. Individuals scored high on the abuse scale if they developed tolerance, took a long time to get over the effects, spent a lot of money on drugs, found their habit affected their job and caused health problems. Regular drug and alcohol consumption often leads to a 'vicious cycle' of self-medication followed by a period of withdrawal characterised by feelings of anxiety and depression. The prompts the user back to intoxication to alleviate the symptoms, says Professor Wayne Hall from the National Drug and Alcohol Research Centre. - WE Australian, 12-13 Sept 1998, p29
In the USA
Neuro -Immune Dysfunction Syndrome (NIDS)
A new US Medical Advisory Board has formed at accelerate research on NIDS , which includes;
• autism
• pervasive deficit disorders
• attention deficit hyperactivity disorder
• chronic fatigue syndrome.
NIDS Medical Board comprises distinguished researchers and clinicians in there disorders. Chairperson of the board, Dr Michael Goldberg visited Australia recently to address medical practitioners about this research. "We can no longer patiently wait for the normal five to ten year period of traditional research ... A child's brain continues to evolve from birth for at least ten years. Research time is critical for children suffering from these disorders."
More information from http://www.neuroimmunedr.com
Research
Review of 13 diet studies
The decision of scientists in 1980 to discredit Dr Feingold's hypothesis about the effect of food on children's behaviour and learning appears to have been premature. When Queensland dietitian and researcher Joan Breakey reviewed recent research, she found that mood, especially irritability, is the symptom most affected by diet. Since rrritability is the core of oppositional defiant disorder, these findings are crucial.
In Breakey's review of 13 significant diet/behaviour studies from 1985-1995, almost all studies showed a statistically significant change in behaviour with dietary intervention. Responses could be full or partial compared to all-or-nothing earlier expectations of the effects of food. Children most likely to be affected include those with a personal or family history of "allergy", a family history of migraine, young children, and those for whom a definite food reaction has been noticed in either the child or a relative.
"Mood, especially irritability, is the symptom most affected by diet
"Foods and food chemicals implicated in reactions include natural and medicinal salicylates, natural and added monosodium glutamate, natural amines and added colour as well as flavour and preservatives, and wholefoods (especially which have produced a definite physical or behavioural reaction in the child or first degree relative at some time), such as milk, wheat, egg, peanut, fish and soy. Non-food items which have been implicated in behavioural reacations are perfumes, fumes, inhalants commonly implicated in allergy, infections and stress. Many researchers report that most subjects react to more than one test item.
Professionals can now be aware of dietary treatment as an option for some children. They can be supportive of parents who wish to consider diet, particularly as motivation is important in the diet implementation.
Breakey concludes: "Rather than saying diet is too hard, or it is easy (just excluding the well known suspect foods)", diet can be most effective with the help of a dietitian, preferably one experienced in this specialised area.
Joan Breakey was awarded an M.Sc for her research into behavioural effects of food. Further reading: Breakey J "The role of diet and behaviour in childhood" J Paediatr Child Health (1997) 33,190-194 and Are you food sensitive? by Joan Breakey, $20 incl p&p from PO Box 8, Beachmere, Qld 4510, fx 07 5496 8194.
Research
ADHD brain study
The brain activity in ADHD and unaffected men was monitored while they completed a task. Participants heard a series of numbers, one every 2.4 seconds, and were asked to add the last two digits they heard. Looking at positron emission tomography (PET) scans, Emory University researcher Julie B Schweitzer saw two major differences between the groups. First, the ADHD individuals maintained high levels of blood flow, whereas the controls displayed deactivation in the temporal gyrus region, indicating some kind of learning. The ADHD group also activated brain areas used for visual tasks. Researchers found that instead of repeating the numbers to themselves as some of the controls did, many of the ADHD group had visualised the numbers.
- Scientific American, August 96 p9
Reader comment
Powerhouse brain
-An 18 year old writes about the elimination diet
:"...the diet has been immeasurably useful. I can now think better, clearer, and I can reason logically where before an idea would just revolve around in my head. I can now do household chores! This might not seem too momentous, but just ask anyone in my household. I actually have fun cleaning up the kitchen now!
I have ventured forth from the den of my room, and have spent less time skulking around the Net and more time socialising ...
Thanks to the diet, I am going to try again to pass Year 12 next year, so I can go to university and do a degree in journalism. It's quite interesting to trace the time in my life when I started doing badly in school. It was the exact time that I moved to the city, started eating more junk food like meat pies, ham etc. I continued to do worse and worse in school until I dropped out of Year 13 last semester. Now, I can be confident of having my old powerhouse brain back again.
- Russell Dovey
Research
Biochemisty of autism
There is a feeling that the number of cases of autism is rising, that it is part of a modern 'plague' in developmental illnesses which includes attention deficit syndrome, hyperactivity and dyslexia. Autism is characterised by a complete withdrawal from social contact, a lack of speech and a general unawareness. Many autistics are retarded but some have normal IQs. In the milder form of autism known as Asperger's syndrome, the symptoms may be no more than extreme physical and social clumsiness - the so-called eccentric boffin syndrome.
Patients who have improved after suffering severe autism talk about how their minds fail to pull the world together in a coherent way. The withdrawal, the uncomprehending tantrums, the fascination for simple or repetitive stimuli all follow from not being able to make sense of the world. One sufferer said she could not see faces, just collections of noses, eyes and mouths. Words were just strange noises. She found people, with their looming presence and unpredictable movements, too threatening and so lost herself in safer activities such as watching motes of dust floating in the air.
In Britain, biochemist Paul Shattock, himself the father of an autistic son, has stumbled on a possible mechanism to explain why autism may be caused by dietary substances leaking through the gut wall and eventually reaching the brain. He has discovered that the levels of a breakdown product of inoleacrylic acid are higher in the urine of autistic children. Very little is known about the acid except that it is a byproduct of the pathway that tranforms the amino acid tryptophan into hormones and neurotransmitters like seratonin. Shattock does not know why autistic children may make more indoleacrylic acid, or whether it is a cause or effect of autism, but he intends to pursue his theory.
-from 'Gut Reaction', New Scientist, 20 June 1998, p42-5
WHAT'S ON
Oct 10 Social Skills workshop for children/Teens with learning difficulties (also Dec 5 and March 13), University of Western Sydney, Milperra, phone 02 9772 9229
Oct 11, 18, 25 Spalding reading method teacher courses, Sydney (Cherrybrook), phone 02 9894 5711
Oct 13 Autistic Spectrum Disorder Workshop, including Semantic Pragmatic Disorder, Tourette's Syndrome, ADHD, Hurstville, Dr Tony Attwood, phone 02 9540 3011, Cost $150
Nov 6-7 Depression in Young People national seminar, Adelaide, contact Einet
Nov 21 Managing behaviour in difficult-to-handle young children, Dr Paul Hutchins & Dr Jessica Grainger, Uni of Western Syndey, Milperra, 02 9772 9229
In the USA Nov 13-15
1st National ADD Advanced Meeting, Palm Springs California.
Contact: FH@futurehealth.org.
Topics: Attention Differences & Directions, Gifts, Alternative & Mainstream Approaches & the Neurobehavioral Continuum: for professionals focusing on ADD/ADHD, Autism, Tourettes, Aspergers and Peak Performance, assessment, treatment, empowerment, scientific & professional topics Confirmed Speakers include Thom Hartmann, Lynn Weiss, Lynda Thompson (co-author, The ADD Book), topics to include: assessment: brain imaging, diagnostic criteria, populations: ADD/ADHD: child, adult, women, gifted, couples, comorbidities; autism, tourettes, neuro-behavioral continua, professional topics: practice management/ development, insurance, advocacy, legal issues Interventions: treatment, medications, nutrition, exercise, education, therapies, optimal functioning coaching strategies, neurofeedback, Complementary alternative approaches Positive models: gifts of ADD/HD, creativity, non-pathological models, self-esteem
ADD Networking
WHAT'S HAPPENING AROUND AUSTRALIA
Do you have some news which will prevent people in other states from reinventing the wheel?
SA Many teacher training courses offer no education about ADHD, and others devote 5 or 10 minutes of a three year course to the topic. WHen ADHD is metnioned it is often with out-of-date misinformation which tends to reinforce the mistakes and the prejudices put out by the media. ADASA intends to apprach tertiary institutions to rectify this situation. DEET has already been informed of the problem. Nayano Taylor-Neumann ADASA 08 8221 5166
WA The Learning Base clinics in Perth offer pre-apprenticeship literacy and numeracy skills for Year 9 or 10 boys, in particular, who want to work with their hands but who need help with specific literacy and numeracy issues to help get them into a job. One young man who wanted to be a butcher was able to learn to spell the various types of meat he was dealing with because he was interested and could see the need to learn. "We try to find out what they are good at and then use that as a basis to extend their skills," says Victoria Carlton, who runs the clinics. In as little as seven weeks, students could be given the skills they need to get them into a traineeship or apprenticeship.
NSW A special education teacher in NSW explains, 'thanks to screening every student who goes into the school for visual processing disorder, at the school where I worked for a while volunteer reader/writers go into every examination for about 60 kids from year 7-12 and have done for some years. Parents are referred by the teacher to the parent support group and on to a diagnostician.' If this isn't happening at your school, then your child may be disadvantaged. We suggest you write to the Chairperson of the Board of Studies in your state, explain that this is happening in some schools in NSW, and ask why it isn't available locally.
QLD After more than 10 years of study, Griffith University researchers have improved the reading speed of visual dyslexics by up to 25 per cent in some cases. Applied psychology lecturers Dr Elizabeth Conlon, Dr Trevor Hine and Dr Mark Manning have devised a treatment program based on colour. "The whole idea of using coloured lenses and overlays has always been controversial. The previous claim that a single colour suits everyone has just proved too simple," says Dr Conlon. "For most individuals who suffer dyslexia and visual stress, there is a particular colour used in tinted glasses or plastic page overlays which will bring their reading up to speed'.
Networking
CAMHS CONFERENCE
The third Child and Adolescent Mental Health conference was held in Sydney in July. It was attended by 400 health professionals and 60 carers/consumers, including adolescents. Sessions included schools and mental health, children with special needs, disruptive disorders, conduct disorders, personality problems, development disability, suicide prevention, early intervention, depression, medication use in young people (3 papers almost entirely about ADHD because they are the biggest user group), family therapy, wilderness and adventure therapy, autism, psychosis, anxiety disorders and a consumers' forum. Because ADHD is the biggest cause of referrals to mental health services for under 18 year olds, ADHD and co-morbid conditions were well covered.
Presenters ranged from distinguished psychiatrists and paediatricians to parents and consumers. A highlight was Agrivaine MacLachlan's dynamic address about her experiences. Agrivaine spent years as a psychotic in the street kid/punk rock scene and is not afraid of the 'f' word. Her address was moving but definitely not boring.
Consumer participation was capably organised by Adelaide ADHD parent and OITH reader Beth Smith. Part of the value of the conference was meeting others and we had plenty of opportunity to do this.
One result of the national mental health conferences is the formation of a national association. Beth says, "we need a national mental health group because lots of smaller national groups with single issue focus, eg ADD, Autism, Tourettes, are too small to have to strong political voice that is needed to bring about change in legislation and funding."
There is now a national mental health website: <http://auseinet.flinders.edu.au>) and mailing and discussion list. The focus will be on Early Intervention for Mental Health in Young People. Argument, criticism, discussion, clinical information and any other matters you may wish to promote are expected. To subscribe simply email majordomo@auseinet.flinders.edu.au, and in the body of the message put: subscribe einet.
The fourth national CAMHS conference will be held at the end of next year in Brisbane. We'll keep you posted. There will be more highlights from this year's conference in our next issue.
- Sue Dengate
ADDnet committee: Acting president Beryl Gover ACT 06 290 1984, Secretary Rosemary Borg phone 07 3817 2429, Treasurer Jan Clark TAS 03 6425 9403, Ros Mitchell NSW 02 9411 2186, Geraldine Moore VIC 03 9650 2570, Sue Dengate NT 08 8981 2444, Nayano Taylor-Neumann SA 08 8222 5159, Tracy Willet WA 08 9401 6282
Getting in touch
If you or your children have diabetes or gestational diabetes, the Southern ADD Support Group would like to hear from you. Write to Kath Pascoe, PO Box 352, Happy Valley SA 5159
ORDER IN THE HOUSE!
production teamEditor:
Sue DengateAssistant editors: Dale Stauffer, Margie Turner
Subscriptions: Margie Turner
Cartoons: not to be copied for profit: Joanne Van Os (copyright)
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Acknowledgements: Thanks for advice, encouragement or contributions to Dr John Ellard, Dr Chris Green, Dr Paul Hutchins, Dr Loretta Giorcelli, Dr Sheila Metcalf, The Serfontein Clinic, Dr Velencia Soutter, Dr Anne Swain, Joan Breakey, Ian Wallace, Maria D'Iono, Damien Howard, Katherine Tiffen, Marion Leggo, Rosemary Borg, Deborah Harding (Qld), Annette Aksenov, Nayano Taylor-Neumann, Beth Smith (SA), Jan Clark (Tas), Joy Toll and the LD Coalition of NSW, Ros Mitchell, Julie Appleton, Anne Dibb, Lee Gallagher (NSW), Geraldine Moore, Marina Dalla Rosa (Vic), Tracy Willet (WA); Jane Miles, Sue Armstrong (NT), the many parents who have written, phoned and sent encouraging comments and groups who have sent newsletters. Dr Howard Dengate and Peter Stauffer for paying the phone bills, the kids from the Don Dale Detention Centre for folding newsletters, and CLARE MARTIN'S electorate office for photocopying.
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Next publication date 14/11/97
The terms ADD and ADHD are used synonymously throughout this newsletter.
Please acknowledge the source when reprinting articles and for cartoons, Joanne Van Os .
PO Box 85, Parap NT 0820. Phone 08 8981 2444 Fax 08 8988 8023 E-mail: sdengate@ozemail.com.au Subscription enquiries Margie 08 89 88 1688 weekdays 8am-2pm CST.
ORDER IN THE HOUSE! does not endorse any particular school, service, business, treatment or theory. Articles and announcements are for information only.
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Genetic research
Where would we be without ...?
American researchers are considering the prospect of neonatal tests to reduce the risk of producing a manic-depressive child. 'Is this, I wonder, tantamount to culling a potential Isaac Newton or a Spike Milligan?' asks writer Robbie Vickers.
- from a review of Mood Genes by Samuel Barondes, New Scientist 13/6/98, p43
Sound familiar?
A 'twitchy' mind
'His mind was twitchy, like his fingers, which were always moving.'
- Ophelia Dahl describing her father in 'Roald Dahl Treasury'
Chemicals
What's new with head lice?
Head lice infestations are becoming more widespread as resistance develops to chemical treatments. Several readers have asked about non-toxic treatments.
Parents who are concerned about toxicity worry about warnings like the one on malathion which states that repeated minor exposure may have a cumulative poisoning effect, and that poisoning can occur through skin absorption.
In Belgium, researchers found that the only treatment with evidence of effectiveness was 1% permethrin cream, that lindane and natural pyrethrins were 'not sufficiently effective to justify their use' and that malathion and carbaryl 'needed more research'.
Parents are encouraged by health experts to minimise the use of pesticides to a single wash with the head lice treatment followed by intensive combing with a nit comb. Are there any other options?
A new product containing cold-pressed oil from the Indian neem tree which demonstrates 'no mammalian toxicity' is recommended by representatives of several schools. Canteen manager Lindy Scott says, 'Nimbin Central School introduced Liceguard early in 1996 when head lice were raging though the community. The reports I have received have been nothing but positive ... I recommend this product simply because it works where other, much more expensive products left a lot to be desired.'
Further reading: Vander Stichele RH and others Systematic review of clinical efficacy of topical treatments for head lice. British Medical Journal 1995;311:604-608
Neem products : ask for Liceguard at your local health food store or pharmacy, or phone/fax the national distributor on 02 6688 6150
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An Order in the House! feature
ADHD and giftedness
Giftedness has traditionally been associated with high academic achievement but since the 1980s, the concept that gifted students can also have learning disabilities has gained acceptance. A similar trend is occurring with ADHD. It is difficult to consider a student's giftedness when confronted with a student who is in constant motion, being verbally and physically abusive and defiant of teacher authority. In the face of such misbehaviours, it is understandable that a teacher may not see the child's gifts and talents. The giftedness is masked by the ADHD.
Conversely, the behaviour and attitudes shown by gifted and creative students may be misinterpreted as ADHD. With few exceptions, the behaviours associated with ADHD may also be associated with giftedness (see table).
Behaviours associated with ADHD (Barkley, 1990) Behaviours associated with giftedness (Webb, 1993)
1. Poorly sustained attention in almost all situations. 1. Poor attention, boredom, daydreaming in specific situations.
2. Diminished persistence on tasks not having immediate consequences. 2. Low tolerance for persistence on tasks that seem irrelevant.
3. Impulsivity, poor delay of gratification 3. Judgement lags behind development of intellect.
4. Impaired adherence to commands to regulate or inhibit behaviour in social contexts. 4. Intensity may lead to power struggles with authorities
5. More active, restless than normal children. 5. High activity level; may need less sleep
6. Difficulty adhering to rules and regulations. 6. Questions rules, customs and traditions.
Off-task behaviour
Gifted children may spend from a quarter to a half of their classroom time waiting for others to catch up. Their specific level of academic achievement is often two to four grades above their actual grade placement. Such children often respond to slow-moving class situations by off-task behaviour, disruptions and other attempts to amuse themselves. This is often the cause of a referral for ADHD.
Attention span
Children with ADHD usually have a very brief attention span in virtually every situation except for television and computer games whereas children who are gifted can concentrate comfortably for long periods on tasks that interest them and do not require immediate consequences.
Activity levels
Many gifted children are highly active, and as many as one quarter may require less sleep, but their activity is generally focused and directed. This permits them to spend long periods of time focusing on whatever truly interests them, which may not coincide with the expectations of teachers or parents.
Variability of performance
Children who are gifted routinely maintain consistent efforts and high grades in classes when they like the teacher and are intellectually challenged, although they may resist repetition of tasks perceived as dull. In contrast, the academic performance of children with ADHD can vary dramatically on a day to day basis. They can achieve 95% one day and 35% two days later on a test of the same material, yet when questioned by the teacher can retrieve an enormous amount of detail.
'Gifted students with ADHD, by their very nature, are particularly disposed to underachievement.'
Overlap
When the characteristics of giftedness and ADHD overlap, the student is likely to have a record of academic failure as well as a history of significant social difficulty with same age peers and possible rebellion. The student will also display many characteristics of giftedness, including cognitive abilities far beyond those of classmates whose performance on IQ tests is within the same range. Gifted students with ADHD, by their very nature, are particularly disposed to underachievement. Their level of achievement may improve with a highly structured program.
Identifying giftedness and ADHD
Children with ADHD are known to underachieve on standard IQ tests and at school. When identifying giftedness in this group, the critical factor is the presence of a discrepancy between the student's potential and their performance. Recently, teacher nomination has become an accepted practice in identification of gifted students. Obviously, teacher nomination is particularly important when dealing with ADHD or any other situation which interferes with test-taking. In this case, teachers' knowledge of both ADHD and giftedness will enable discrimination between these two conditions. The aim is to help gifted ADHD children to achieve their true potential.
Further reading
Barkley, R Handbook of ADHD, Guilford, 1990
Mendaglio, S and others 'Gifted/ADHD case illustrations of coexisting conditions', paper presented at the 11th world conference on gifted and talented children, Hong Kong, 1995.
Webb, J and Latimer, D, 'ADHD and children who are gifted', ERIC Digest #522, 1993
Medication
Cocaine and Ritalin
A possible connection between Ritalin and later cocaine use made front page news in the Sydney Morning Herald. What's behind it?
A similarity between the way Ritalin and cocaine affects the brain has been found by US researchers. They suggest that cocaine may have a bigger impact on people who were treated with Ritalin, thus increasing the likelihood they will 'develop a taste for cocaine'. Animal experiments support the claim that Ritalin may encourage cocaine use. Further, a long-term study of 5,000 Californian adolescents with ADHD found that, as adults, those treated with Ritalin were three times more likely to use cocaine, although they were no more likely to abuse alcohol or marijuana than those who did not take the medication.
Research by Dr Nora Volkow, director of nuclear medicine at the Brookhaven National Laboratory in Upton, New York, used positron emission tomography (PET) to find
the distribution of Ritalin in the human brain was 'almost identical to that of cocaine ... we've given it to cocaine users and they say it's almost indistinguishable' says Volkow. Cocaine is one of the most addictive substances of abuse, and Volkow explains 'if we don't treat them, they will turn to substance abuse' as a form of self-medication. Although 10 to 30 per cent of cocaine abusers take cocaine because they have ADHD, 'when we give them Ritalin, the cocaine problem is revolved.'
After finding that stimulant-taking rats were more likely to choose cocaine, pharmacologist Dr Susan Schenk at Texas A&M University in College Station joined Dr Nadine Lambert, a psychologist with the University of California at Berkeley for the adolescent survey. They found that, as well as being more likely to abuse cocaine, adolescents who had used Ritalin were more likely to smoke.
Other researchers do not agree. Psychiatrist Lily Hechtman at the Montreal Children's Hospital compared people who had taken Ritalin for 3-5 years with an ADHD non-Ritalin group and non-ADHD group. She found no differences in substance abuse between the groups.
A conference this November, hosted by the US National Institutes of Health, will focus on research findings regarding the effects of Ritalin.
New Scientist 18/4/98, p18-19
In this issue
Medication
Ritalin and cocaine
Parenting
Who'd be a parent?
Behaviour
Respect in times of stress 8
Adults
Five management tips
ADHD and marijuana
Education
Reading program
Research
Solvents
Diet
Are you food sensitive?
Fed Up
Editorial
Five years ago, our readers wanted to know about ADHD: 'what is it?'. Now, we notice more interest in treatment options: 'what can we do?'. Psychologists, teachers, doctors and paramedicals now know about ADHD and help is available. Hailed as the most comprehensive parenting manual available in Australia today, Dr John Irvine's Who'd be a parent? is a good example of new-look advice to parents, with plenty of information about ADHD, see page 0.
The susceptibility of people with ADHD to illegal drug use is always a worry to parents. In this issue, see articles on cocaine (p.0) and marijuana (p.0).
My son has been lucky to have a number of exceptional teachers. His all-time favourite took over an uncooperative class with a high proportion of difficult individuals and created happy, productive children with high self-esteem. She used virtually all the management techniques in Brooks' The self-esteem teacher. The strategies work equally well for creating happy families. I can't recommend it highly enough (p.8)
There is now less expectation that medication will be a single magic cure. Management, educational programs (p.0), Efalex (p.0), diet and other methods are increasing in popularity. A Southern reader reported, 'I looked at lots of group newsletters and decided to subscribe to yours because it has the most information about diet.' There are two new books about dietary management out this month. Yes, one of them is mine (see p.0).
- Sue Dengate, editor
In brief
Autism
About half of all close relatives of autistic children have milder symptoms including language and social problems. Researchers at Johns Hopkins Medical School used magnetic resonance imaging to look at the brains of twins with autistic symptoms. They found some areas were significantly smaller in those with autistic symptoms. These were areas involved in emotion, learning and memory, shifting attention from one task to another, planning and problem solving and language processing. These effects have been obscured by natural variations in previous non-twin studies.
- New Scientist, 13/6/98, p11.
Sleeping pills
More than 250,000 Australians use sleeping medication for six months or more. Be careful! Prolonged use results in tolerance to the drug, nervousness, tension, trembling, sweating and disturbed sleep. "So the very medication that starts helping you sleep if taken one or two nights a week eventually disturbs your sleep if taken for too long', warns Melbourne clinical psychologist and sleep specialist Dr David Morawetz.
- The Weekend Australian Living IT, 13/6/98, p15
Classroom behaviour
A well managed, highly structured classroom is necessary for children with ADHD, according to Dr Alan Hudson of RMIT's Department of Psychology and Intellectual Disability Studies. Teacher praise and disapproval are not sufficiently strong reinforcers for ADHD children and reinforcers such as stickers may still be insufficient. Teachers and parents can work together so that the child has access to home-based rewards such as television viewing or pocket money.
- Hudson A 'Classroom instruction for children with ADHD' Aust J Early Childhood (1997),22 (4):22-27
The reading list
A novel for high school students who love reading, try The Beach. It's about a group of young backpackers who drop out on a secret beach in Thailand. Gripping. They'll read it in one gulp.
- The Beach by Alex Garland, Penguin, 1996.
For teachers
A reader comments, 'so far I've only read the first chapter and I've learned heaps' about the new book for teachers, 'Attention Deficit/Hyperactivity Disorder: Medical, psychological and educational perspectives'. Specially produced by the Australian Association of Special Education, the book is edited by Professor Jeff Bailey, director of CHERI (Children's Health and Education Research Institute) and senior lecturer in Education at University of Southern Queensland special education Dr Don Rice.
- Available from Deborah Pearce, CHERI, New Children's Hospital, PO Box 3515, Parramatta NSW 2141. $19 incl p&p. Ph 02 9845 3017, fx 02 9845 3082, visa and mastercards accepted.
Lead
Lead is the only environmental factor associated with ADHD symptoms in the NHMRC report. A new study questions effects on the foetus. Researchers exposed pregnant rats to the same levels of lead as ingested by humans from lead water pipes or leaded house paint. At 13 weeks, the rat pups showed an abnormal immune response which may be associated with susceptibility to viruses and perhaps asthma.
- New Scientist, 23/5/98, p7.
Spell checker
The Innovations Spell Checker offers spell checking on up to 80,000 words in English (not American), will search for missing letters, and search mode includes phonetical checking. It also includes a calculator function. At $39 it is a lot cheaper than a word processor. Has anyone tried it? For more information, phone 1300 303 303 (order code is SISA).
Adults
Five tips for adults with ADHD
1. Be sure of the diagnosis. Make sure you're working with a professional who really understands ADD and has excluded related or similar conditions such as anxiety states, agitated depression, hyperthyroidism, manic-depressive illness, or obsessive-compulsive disorder.
2. Educate yourself. Perhaps the single most powerful treatment for ADD is understanding ADD in the first place. Read books. Talk with professionals. Talk with other adults who have ADD. You'll be able to design your own treatment to fit your own version of ADD.
3. Coaching. It is useful for you to have a coach, for some person near you to keep after you, but always with humour. Your coach can help you get organised, stay on task, give you encouragement or remind you to get back to work. Friend, colleague, or therapist (it is possible, but risky for your coach to be your spouse), a coach is someone to stay on you to get things done, exhort you as coaches do, keep tabs on you, and in general be in your corner. A coach can be tremendously helpful in treating ADD.
4. Encouragement. ADD adults need lots of encouragement. This is in part due to their having many self-doubts that have accumulated over the years. But it goes beyond that. More than the average person, the ADD adult withers without encouragement and positively lights up like a Christmas tree when given it. They will often work for another person in a way they won't work for themselves. This is not "bad", it just is. It should be recognised and taken advantage of.
5. Realise what ADD is NOT, ie., conflict with mother, etc.
- from Fifty tips for ADD adults on the internet by Drs EM Hallowell and JR Ratey, two US psychiatrists with ADHD. Authors of Driven to Distraction and Answers to Distraction, available from Silvereye Educational Publications, phone 02 4987 3457, email:silvereye.hunterlink.net.au
Reader comment
Efalex and pycnogenol
We continue to hear from readers who say that Efalex is worth a try. It doesn't work for everyone, and some children get worse (oppositional, withdrawn, or 'won't eat'), but a number of readers have noticed that after days or up to three weeks, their children are calmer. Pycnogenol seems to work for a fewer number. Both are expensive.
Booklets with information and results of research (for Efalex) are available from the distributors, Efalex, phone freecall 1800 064 953, Pycnogenol phone 02 29437 3888. Note: this article is for your information, not an endorsement.
Parenting
Who'd be a parent?
I wish this book had been available when I had my first child. The worst problems I was experiencing didn't even appear in parenting manuals then. This one has them all listed with heaps of sensible and sympathetic suggestions. Whether you're looking for a specific problem or just browsing, you'll be entertained and learn from this book. For example:
• hug-shy kids - 'As grown-ups, they may constantly search for sex at any price to earth their emotional electricity'
• discipline - 'Dedication and persistence are much more powerful tools than violence'
• 'An absent Dad' story by Peter Ritchie, McDonald's businessman, which begins: 'I have many regrets about my priorities as a father ... I wasn't there when I should have been'
• the parent pentathlon homework medley event, and how to avoid it
• classic kids' styles from Bossy Bianca to Forgetful Fred, Cyclone Sam and Angry Alex - which one is yours? - and how to handle them
• describing the function of condoms to kids
• from PM John Howard: 'I believe that bringing up children is the most important thing people do in their lives and nothing replaces time spent with your children'.
• and the 'ADD wanted' story about the coach whose football team won the season by drinking red cordial.
This book would make a great gift for new or old parents. And can you be without it yourself?
Who'd be a parent? by Dr John Irvine, Pan McMillan, 1998, RRP $19.95, in all good bookstores
Education
Reading
Children's illiteracy is a 'major public health problem' according to the U.S. Public Health Service's declaration in 1997. An estimated 40% of American children are poor readers and half of those have severe problems. An Australian survey in 1996 found that nearly 30% of students in Years 3 and 5 did not reach a set standard on reading. If a child hasn't learned to read well by age 9, most likely they will remain poor readers for the rest of their lives. With that failure often comes a lifetime of disappointment and privation - and burdens for society, according to reading researchers.
A long-established reading program from the U.S. is now gaining popularity in Australia. Unlike other multi-sensory methods such as Lindamood-Bell and Slingerland which are for learning disabled children, the Spalding method acknowledges the increase in the number of pupils with specific learning disabilities and is designed for the ordinary classroom.
'If a child hasn't learned to read well by age 9, most likely they will remain poor readers for the rest of their lives.'
Developing the eyes, ears, voice, hand and arm muscles and the right and left sides of the brain concurrently, Spalding encourages the growth of the mind's power to reason, imagine and remember. It begins by teaching kindergarten pupils the 45 sounds of the English language. In 2 to 3 months the children are taught to recognise, name and write the single letters and the 2-, 3- and 4-letter combinations called phonograms which represent the 45 sounds. With the help of 70 phonogram cards which show all the possible sound combinations in English produced by, for instance, 'ea' as in 'eat', 'head', 'break', the youngsters can master all the basic aural and visual patterns in words.
Spalding teaches as much phonics as the children need. Once these skills are fully in place the pupils can concentrate on reading comprehension and writing to develop the love of reading which is responsible for lifelong learning. The emphasis is on teaching reading effectively to all levels of students, thus avoiding the need for remedial programs later on.
Staff at three exclusive girls schools, Ascham, Presbyterian Ladies College and Tangara, are enthusiastic about the program. Mrs Sallie Norsworthy, Headmistress of PLC, says 'Spalding ... is proving to be even more effective for more children ... most girls have already achieved a spelling age of one to five years ahead of their grade expectation'. In the US, a 'Spalding School' has held the highest ranking on US national and state assessments of Reading and English Language for the last eight years.
In Australia, Spalding courses offered are teacher training 1 & 2, and a parents' introduction. See What's On.
More details from the Spalding Education Foundation, PO Box 6105, Dural Delivery Centre, Dural 2158, ph 02 9894 5711, fx 02 9634 6184
Adults
Marijuana and ADHD
The following is a summary of a talk presented by John Anderson to ADDult NSW.
Statistics suggest that 40% of ADHD children are predisposed to substance abuse during adolescence or adulthood. Of the ADHD population who are poly substance users, 67% smoke marijuana. Many behavioural changes are similar to those of ADHD: academic ability decreases; sniffles, colds, trivial illness, especially respiratory system; concentration levels decrease; depersonalisation; increased levels of anxiety; increased depression; reaction times slows; short-term memory difficulties; a lack of motivation or interest in things previously enjoyed; increased impulsivity; space and time distortion; may increase appetite.
Research suggests:
* Two cannaboids found in marijuana affect chromosomal structure. Three studies have shown that females who were heavy smokers of marijuana prior to pregnancy produced children who demonstrated significantly disturbed behaviours compared to mothers who did not smoke marijuana - the behaviours described were ADHD.
* Smoking one joint a day, three days a week for six month results in changes in brain physiology that can be detected three to five years later.
* Marijuana decreases the amount of T-cells in the blood, weakening the immune system.
* There is a higher incidence of jaw, tongue and throat cancer among marijuana users.
* Long term users may develop drug-induced psychosis. Other than those who develop drug-induced psychosis and cancer, all other effects are fully reversible with total abstinence.
You can obtain an audio tape of this talk for $8 from ADDult NSW, PO Box 472, Sutherland 2232.
Management
Can you teach kids to concentrate?
The danger for children being given drugs to calm them down is that they come to believe that they do not have to take responsibility for their own actions, according to teacher Jean Robb and children's librarian Hilary Letts. For such children, the pride in learning self-control, self-discipline and new skills for new stages of life has been taken away.
Robb and Letts' book is full of suggestions which sound so simple you wonder if these authors really understand ADHD, but they claim to be successful. The authors recommend observing your children, paying attention to them, teaching them the consequences of their actions, social and other skills. In one anecdote, an Asperger's girl named Margaret was cruel to animals. The mother was advised to explain to her daughter that a vulnerable animal needs her care and to think about the consequences of her actions. 'When Margaret's mother tried these things she found that they worked. She was able to talk to Margaret and Margaret was fascinated by the discussion.'
Instructions for teaching an ADHD child to be still:
1. Ask the child to lie down and see if he can be still by the time you count to ten - slowly. Lying still means not moving at all.
2. When the child moves, tell him which number he managed to get to before he moved and then try again and see if he can get further.
3. Take it in turns so sometimes he counts to ten while you lie still. This gives him a chance to see someone else being still.
If these suggestions really do work, they are worth a try. We'd love some feedback on this one, please.
'Creating kids who can concentrate: proven strategies for beating ADD without drugs' Jean Robb & Hilary Letts, published by Hodder & Stoughton, 1997.
Environment
Steer clear of solvents
Symptoms of exposure to solvents can include behavioural and learning problems such as poor short term memory, poor coordination, mood change and developmental disorders. Effects are dose-related and subclinical effects have been detected in workers who are not really ill. Some people have been affected by chronic, long-term exposure to levels smaller than those considered safe. Drinking alcohol can worsen the effects on the nervous system. Effects can be permanent. Treatment consists of avoidance of further exposure and treatment of symptoms with drugs such as antidepressants or stimulants. Occupations identified as high-risk for solvent toxicity include:
• mechanical and automotive engineering
• metal-part degreasing
• spray painting, painting and varnishing
• dry-cleaning
• hobbies such as crafts which use solvents
• solvent abuse
Further reading: White RF and Proctor SP 'Solvents and neurotoxicity' The Lancet, 349, 1997:1239-1243
Education
Youth suicide blamed on school pressures
The Principal of a top Queensland private school has linked Australia's high youth suicide rate to inadequate education facilities for less academically gifted students. Nudgee College Principal Brother Harney said that the lack of vocational programs deprived four out of every 10 students of the opportunity to learn. 'They are gifted and talented in their own right but their skills don't lie in physics classes, for example. They are graphic artists, skilful musicians, skilled at manual labour and construction, talented cooks and clothing designers. Because vocational programmes cost more to run, governments have tended to ignore students in this area.' The hopelessness youth experience after failing school was one factor which contributed to Australia's record high youth suicide rate.
- Courier Mail 21/3/96
WHAT'S ON
July 23-26 Child and Adolescent Mental Health conference, Sydney
Sept 3-5 1st international Neurocare conference, special guest lecture by neurologist Dr Oliver Sacks, Adelaide, ph 08 8357 8909
Sept 25-27 Montessori National Conference, Freemantle, WA, fx 08 9385 2424, email zbeehive@cc.curtin.edu.au
Spalding teacher courses, phone centre 02 9894 5711 unless indicated otherwise:
Darwin: July 7-16
Sydney (Waverley) 6-10 July, 13-17 July
Tamworth 24-26th July, 14-16 August, 4-7 Sept, ph 0267 664420
Orange 26 Sept-4th Oct, 02 6392 0300
Sydney (Cherrybrook) 11,18,25 Oct
Spalding parent courses
Tasmania (Gagebrook) 22-26 June, ph 03 6233 7415
Melbourne (Burwood) 16, 23 July ph 03
Brain studies
ADHD functioning
The brain activity in ADHD and unaffected men was monitored while they completed a task. Participants heard a series of numbers, one every 2.4 seconds, and were asked to add the last two digits they heard. Looking at positron emission tomography (PET) scans, Emory University researcher Julie B Schweitzer saw two major differences between the groups. First, the ADHD individuals maintained high levels of blood flow, whereas the controls displayed deactivation in the temporal gyrus region, indicating some kind of learning. The ADHD group also activated brain areas used for visual tasks. Researchers found that instead of repeating the numbers to themselves as some of the controls did, many of the ADHD group had visualised the numbers.
- Scientific American, August 96 p9
ADD Networking
WHAT'S HAPPENING AROUND AUSTRALIA
(and the world)Do you have some news which will prevent people in other states from reinventing the wheel?
USA
In Pennsylvania and many other states groups of parents, educators and business people are allowed to band together to create public schools to serve a segment of the population not being adequately served by the existing school system. Called charter schools, they are funded by tax money and must not be of a religious nature. Otherwise, community groups have free rein in creating a school, as long as they satisfy the criteria imposed by the state, such as a proven need for such a school, proven community support, access to a safe facility and an educationally sound program. Some charters in Pennsylvania accommodate children at risk, some are for special interests such as performing arts, technology, environment or Gardner's theory of multiple intelligences.
Most are beneficial for ADD students in that they tend to have smaller class sizes (16-20 per class instead of 25-30), and often feature more hands-on learning and physical movement in the classroom instead of sitting at a desk the whole day.
Currently planned is a Montessori-type program based on child-directed learning: the child's educational program is designed together by the teacher, parent, and child; each child would receive an Individual Educational Program (in public school, IEP's are only given to gifted students or special needs students); the teacher would function more as a facilitator to provide the resources for the child's independent study and the school would rely heavily on interested parent volunteers in the classroom. It might be a good answer for some of the learning needs of ADD kids.
Charter schools have detailed charters listing every aspect of their program. You can purchase copies of the charter for other groups to use as a template in creating their own schools (electronic copy $150, hard copy $100, both for $200, which is a good deal when you consider the months of research that went into creating the charter and the many hours of groundwork that a group could save by using a template). If you'd like to know more, I can give you website and e-mail addresses so you could pursue this further.
- from Arlene Schar in Pennsylvania. Anyone like more details?
Diet
Increasing recognition of dietary management
Although the Feingold diet was officially discredited in 1980, more recent research suggests that diet may contribute to behaviour problems in some children. The official NHMRC recommendation (1997) is that if diet is to be instituted, it should be under the supervision of a qualified dietitian, preferably with experience in this area. The Dietitians' Association of Australia recommend a low-chemical elimination diet and state that a patient's request for investigation of diet is sufficient indication for dietary investigation, as refusal usually results in patients seeking advice from fringe or unorothdox practitioners.
Two books aimed at helping families sort out food sensitivities have hit the shelves this month. Dietitian Joan Breakey has a special interest in the effects of food on children's behaviour. She has researched and practised diet therapy for over twenty years, including as a dietitian for Child Community Psychiatry in the Division of Youth, Welfare and Guidance and as adviser in Nutrition to the Department of Health in Queensland. Are you food sensitive? outlines her unique 'diet detective' method where families can create their own diet, designed to make food manageable for sensitive families. The book is packed with useful hints about individual foods and food sensitivities drawn from Joan's many years of experience.
The second book is by Sue Dengate, author of the best-selling Different Kids. 'Kids have changed', says a school principal in Fed Up. "They come to school angry or unhappy and stay that way all day ... you have to look at food.' Fed Up provides support for families who would like to know more about the low-chemical elimination diet or who have seen a dietitian and come out saying 'where do I start?'.
Are you food sensitive? by Joan Breakey, $20 incl p&p from PO Box 8, Beachmere, Qld 4510, fx 07 5496 8194, see order form on insert for multiple rates.
Fed Up by Sue Dengate, Random House, RRP $19.95, available at all good booksellers.
Networking
ADDnet NEWS
Dr Brooks in Australia
Brought to Australia by ADDnet, US psychologist Dr Robert Brooks gave talks in Tasmania, Melbourne, Sydney, Newcastle and Brisbane in May. Following is a summary of the main points in his presentation Fostering family closeness and respect in times of stress to an audience of 400 in Newcastle.
• To understand what is truly important for our families and ourselves
• The importance of empathy: seeing the world through each others eyes. How would our children describe us?
• The development of stress hardiness: use the '3 C's' mindset - Commitment, Challenge and Control
• To change negative 'family scripts' into positive ones: use humour, have some fun.
• Communicate effectively: active listening, validate what others say.
• Set realistic expectations and goals; accept each person's individuality.
• Teach our children effective ways to solve problems and made decisions.
• Promote a 'curriculum for caring': teach responsibility by modelling caring behaviour; provide them with opportunities to contribute to the community and to the lives of others.
• Search for 'islands of competence', identify and reinforce their strengths, especially during times of stress.
• Discipline with respect. Use constructive discipline that strengthens self-discipline and self-control.
• Offer encouragement and positive feedback: help each family member to feel special and appreciated.
• Teach our children, and remember ourselves, that mistakes and failure are part of learning and part of life.
Reprinted from the newsletter of the Newcastle-Hunter ADHD support group. This group is would like to thank the Hon John Mills, MP and his electorate office staff for their exceptional assistance in preparing for the Brooks seminar and workshops in Newcastle.
If you missed Dr Brooks in Australia, you can buy:
• his excellent book The self-esteem teacher (how to be a popular teacher/parent in a happy and productive classroom/family)
• audio cassette Fostering self-esteem in children and adolescents: the search for islands of competence
• Video of the children's workshop in Newcastle.
See enclosed order form or contact ADDnet treasurer Mrs Jan Clark, PO Box 514, Ulverstone, Tas, 7315.
ADDnet committee: Acting president Beryl Gover ACT 06 290 1984, Secretary Rosemary Borg phone 07 3817 2429, Treasurer Jan Clark TAS 004 293 332, Ros Mitchell NSW 02 9411 2186, Geraldine Moore VIC 03 9650 2570, Sue Dengate NT 08 8981 2444, Nayano Taylor-Neumann SA 08 8222 5159, Tracy Willet WA 08 9401 6282
Getting in touch
A number of children aged from 13 months to 14 years have experienced dramatic itchy skin rashes up to 30 hours after eating instant noodles, pies or party pies. The rashes are intensely itchy and follow a course, eventually covering the whole body and lasting 5 to 10 days. As they may be associated with a new additive, we would love to hear from anyone who has experienced this. Phone 08 8981 2444.
ORDER IN THE HOUSE!
production teamEditor:
Sue DengateAssistant editor: Margie Turner
Subscriptions: Margie Turner
Cartoons: not to be copied for profit: Joanne Van Os (copyright)
Typesetting: Peter Ezzy
Acknowledgements: Thanks for advice, encouragement or contributions to Dr John Ellard, Dr Chris Green, Dr Paul Hutchins, Dr Loretta Giorcelli, Dr Sheila Metcalf, The Serfontein Clinic, Dr Velencia Soutter, Dr Anne Swain, Joan Breakey, Ian Wallace, Maria D'Iono, Damien Howard, Marion Leggo, Rosemary Borg, Deborah Harding (Qld), Annette Aksenov, Nayano Taylor-Neumann, Beth Smith (SA), Jan Clark (Tas), Joy Toll and the LD Coalition of NSW, Ros Mitchell, Julie Appleton, Anne Dibb, Lee Gallagher (NSW), Geraldine Moore, Marina Dalla Rosa (Vic), Tracy Willet (WA); Jane Miles, Sue Armstrong (NT), the many parents who have written, phoned and sent encouraging comments and groups who have sent newsletters. Dr Howard Dengate and Peter Stauffer for paying the phone bills, the kids from the Don Dale Detention Centre for folding newsletters, and CLARE MARTIN'S electorate office for photocopying.
Overseas subscription rates: USA $10 in USA dollars checks, Kiwis please pay 15 Australian dollars
Back copies may be ordered at $2.50 each.
Next publication date 14/11/97
The terms ADD and ADHD are used synonymously throughout this newsletter.
Please acknowledge the source when reprinting articles and for cartoons, Joanne Van Os .
PO Box 85, Parap NT 0820. Phone 08 8981 2444 Fax 08 8988 8023 E-mail: hdengate@ozemail.com.au Subscription enquiries Margie 08 89 88 1688 weekdays 8am-2pm CST.
ORDER IN THE HOUSE! does not endorse any particular school, service, business, treatment or theory. Articles and announcements are for information only.
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Genetic research
Where would we be without ...?
American researchers are considering the prospect of neonatal tests to reduce the risk of producing a manic-depressive child. 'Is this, I wonder, tantamount to culling a potential Isaac Newton or a Spike Milligan?' asks writer Robbie Vickers.
- from a review of Mood Genes by Samuel Barondes, New Scientist 13/6/98, p43
Sound familiar?
A 'twitchy' mind
'His mind was twitchy, like his fingers, which were always moving.'
- Ophelia Dahl describing her father in 'Roald Dahl Treasury'
Chemicals
What's new with head lice?
Head lice infestations are becoming more widespread as resistance develops to chemical treatments. Several readers have asked about non-toxic treatments.
Parents who are concerned about toxicity worry about warnings like the one on malathion which states that repeated minor exposure may have a cumulative poisoning effect, and that poisoning can occur through skin absorption.
In Belgium, researchers found that the only treatment with evidence of effectiveness was 1% permethrin cream, that lindane and natural pyrethrins were 'not sufficiently effective to justify their use' and that malathion and carbaryl 'needed more research'.
Parents are encouraged by health experts to minimise the use of pesticides to a single wash with the head lice treatment followed by intensive combing with a nit comb. Are there any other options?
A new product containing cold-pressed oil from the Indian neem tree which demonstrates 'no mammalian toxicity' is recommended by representatives of several schools. Canteen manager Lindy Scott says, 'Nimbin Central School introduced Liceguard early in 1996 when head lice were raging though the community. The reports I have received have been nothing but positive ... I recommend this product simply because it works where other, much more expensive products left a lot to be desired.'
Further reading: Vander Stichele RH and others Systematic review of clinical efficacy of topical treatments for head lice. British Medical Journal 1995;311:604-608
Neem products : ask for Liceguard at your local health food store or pharmacy, or phone/fax the national distributor on 02 6688 6150
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Issue 15 Term 1 1998
An Order in the House! feature
Assessment provisions for students who have learning disabilities
This article grew out of reports from readers about their problems with secondary education.
Parents of ADHD children often report that their children do worse in examinations than their ability and level of knowledge would suggest. Some parents do not realise that examination provisions or accommodations are available, others would like to apply for special provisions but do not know what would be appropriate for their child. A high number of students with ADHD have associated learning disabilities which are sometimes unrecognised. Their problems may be compounded by the restlessness, inattention and impulsivity which are core features of ADHD.
The concept underlying exam provisions is that each person should be tested on their knowledge not their disability. While it is easy to understand that a person in a wheelchair should be tested on their knowledge of maths or science not whether they can reach an exam room on the second floor, it is more difficult to grasp the concept that someone who is a poor reader should be tested on their knowledge of science or maths not their spelling or ability to read the question. This concept is the basis for the federal Disability Discrimination Act of 1993 which essentially gives students with diagnosed learning disabilities the right to alternate assessment provisions in all learning and assessment situations.
Assessment
The first step in applying for extra help is diagnosis of learning disability, for example, measurement of reading rates, speed and accuracy. This is best done by a professional with a special interest in psychometric testing. One student whose reading ability was tested by a private consultant was tested by the school counsellor months later. The student came in the normal range for his age group. This information was forwarded to the Board of Studies by the school counsellor and the student was denied exam provisions. Since the IQ of the student was very high, the reading should have been in the range of the IQ of the student, that is, much higher than chronological age. The statistical probability of a person with such a high IQ reading at his chronological age should have been brought to bear in the application.
People who need extra help in exams will benefit from on-going support thoughout school and for other forms of assessments. This can be tutoring, help with organisation, study skills and extended deadlines for assignments. The remedial approach is recommended by psychologists who acknowledge the tendency of ADHD students to rush through exams, often answering the wrong question. They can be helped by counselling with 'stop and think' strategies taught to them long before exam time.
A flexible approach
Some students who have consistently underachieved throughout school do well at university and attribute their success to accommodations. In the U.S.A. educational institutions are legally required to provide accommodations for which the cost is not unduly burdensome and which do not require a fundamental alteration of any essential aspects of the program. In Australia 'reasonable accommodations' have been available in universities for some time, but such provisions in secondary schools are less well known.
The Northern Territory University's disability officer, Jeremy Muir, emphasises the need for a flexible approach, for example, discussing options with the student and trying a specific strategy. Does it work? If not, try another strategy. Students must be happy with the suggested provisions.
Some ADHD students are unaware of their learning disabilities and improve when problems are identified. The role of disability officer also includes education of staff as some lecturers are unaware of learning disabilities and surprised at the problems these students face. Others have fears of 'making it unfair', yet non-LD students may well be disadvantaged by provisions such as coloured paper or larger font.
One ADHD student who is gaining credits and distinctions in her course has a note-taker during lectures so she can listen without distraction because 'she would flounder without notes'. Other accommodations include a tutor for an ADHD student with organisational difficulties.
Which provisions are available?
All states in Australia have secondary examination boards which have published information regarding their policies on examination provisions. Provisions such as coloured paper, enlarged print, readers, scribes, computers, audio-tapes and extra time are generally available in universities but may vary from state to state for secondary students.
The examination paper
Students with visual perception or scanning problems will often skip a bit of the question, or answer the wrong question. They may be helped by:
• coloured paper (especially pink or green)
• size of font (14, 16 or even 18 may be most effective)
• using a ruler under each line for reading
• questions which are left justified and clearly laid out
• a reader
Simple provisions were enough to help a young apprentice with dyslexia who became so angry and frustrated by 'the words jumping around' on his exam papers that he refused to attempt answers. With pink paper, a larger font and using a ruler under the line he and his lecturer were surprised and delighted when he achieved 84% and 100% in his next exams.
Readers
The single most important aspect of exam-taking for learning disabled students is the need to read and understand all of the questions. Missing whole questions or misunderstanding through omitting important words such as not is common. If a student cannot understand the questions within a reasonable amount of time and with a reasonable amount of effort then a reader is appropriate, although controversial, in some states.
• in some cases the student can read all the questions aloud to him or herself in a separate room.
• a reader can read all of the questions to the student.
• the reader can also read the student's answers.
A special education teacher in NSW explains, 'thanks to screening every student who goes into the school for visual processing disorder, at the school where I worked for a while volunteer reader/writers go into every exam for about 60 kids from year 7-12 and have done for some years. Parents are referred by the teacher to the parent support group and on to a diagnostician.'
Writer
Research at Sydney University has shown that success in examinations is closely correlated with speed of writing.
A writer will be helpful for children who have problems with:
• verbal processing
• spelling
• low muscle tone leading to hand cramps.
Experts recommend that readers and writers should be competent, sympathetic adults who are good spellers and writers, rather than junior students. The student and reader/writer should have an opportunity to work together before the examination. The exam session can be tape recorded to enable validation of the transcription.
At the age of 12, a girl with severe dyslexia and spelling problems was advised by an education department guidance officer to pursue a career in sport because she would never succeed academically. Still a terrible speller but aided by special provisions to help with writing and spelling she is now completing a doctorate in science.
Additional time and breaks
Extra time alone is unlikely to help a student with predominantly hyperactive/impulsive ADHD but may help a student with predominantly inattentive ADHD. It is more likely to be useful if combined with breaks. Breaks can be recommended, for example, for five minutes every half hour, or ten minutes every hour. If possible the student can decide which is more appropriate at the time.
Computers
Some students may be able to use a word processor or spell-checker to overcome their handwriting or spelling problems.
Audio-taping of stories
Students who have severe writing problems will try to write the minimum, use the smallest words, and will be distracted by their writing difficulties rather than concentrating on the question. Audio-taping can be an alternative.
Separate room
Students who are easily distracted will feel more comfortable in a separate room. This will also make accommodations such as special breaks easier. Some students find the flicker of fluorescent lighting distracting or certain computer screens distracting and will perform better with natural or incandescent lighting. Rooms should be checked in advance of exams for this requirement.
How to apply
Access to exam provisions varies significantly from school to school and state to state. Based on National Health and Medical Research Council statistics, 2000-3000 students may be eligible to apply for exam provisions in NSW alone. In practice, the number of children applying for special exam provisions for learning disabilities varies from a few students in one state to hundreds in another. A disproportionate number of applications are from independent and Catholic schools.
One teacher who had never heard of exam provisions was enthusiastic about the possibility of a scribe (or writer) for a gifted student: 'He's an excellent reader and thinker but he can't get it down on paper. He would get straight As if he had a scribe', she exclaimed. In another school where a year 12 ADHD student was granted special examination accommodations for English, the head teacher commented 'You don't really need these, do you?' and insisted that the student herself inform each invigilator of the accommodations. The student failed her final exam but gained a provisional entry to university where she achieved a distinction in English. What made the difference? 'The people and their attitude,' she declared.
The best place to start asking is the special education teacher at your school, your child's teacher or the secondary examination board in your state. You should start thinking about this at least one year before the examination for which you require provisions and possibly more. 'Exam provisions are unfair for the others,' is the most common objection. One representative of a secondary examination board explained, 'people are not going to go to all this trouble to apply to special provisions if they don't have a problem. We must give them the benefit of the doubt.' - Sue Dengate, Darwin
Do you have any experience with exam provisions? We'd love some feedback! (08 8981 2444)
With thanks to Ted Milliken, psychologist, Jeremy Muir, NTU Disability Officer, OITH readers, Wendy Ridley, special education teacher, Fiona Shanahan, Master Coaching, Mary Temple, psychologist and research from the University of Western Sydney Special Education Unit.
In this issue
Behaviour
self-esteem
Adults
Marijuana
Education
laptops for LD
Research
Bribability
Diet
In the USA
Editorial
If you think that self-esteem is something warm and fuzzy you do after you have sorted out everything else, think again. Good self-esteem is the very foundation for behaviour management and success, and building it is not just a matter of saying nice things to your child. Dr Robert Brooks, considered by many to the the world's leading expert on self-esteem, deals with real life, like problem getting your child to do homework.
I showed the Brooks video What did you do that for? to an enthusiastic audience of parents and teachers. 'How can we see this man?' asked my audience. If you are lucky enough to live anywhere near Sydney, Newcastle, Brisbane, Melbourne or Ulverstone, then don't miss the Brooks seminars in May. Dr Brooks is coming to Australia as the result of hard work by ADDnet. Read more about it on page 00.
As a parent, I know just how difficult ADHD children can be. As a former teacher I am appalled by what teachers have to cope with when they have several ADHD children as well as the rest of the class. Read about the teachers' views on p00,00 and 00. And at last, a book about ADHD written by educators for educators, see review p00.
- Sue Dengate, editor
In brief
Hitting doesn't work
Children who are spanked once or more a week are much more likely to develop anti-social behaviour in the next two years, according to a U.S. study. This effect was particularly strong in older children. The authors estimated that if parents who spanked once per week stopped altogether, about 20% of children could benefit.
Further reading: Straus MA and others Spanking by parents and subsequent antisocial behaviour of chidlren. Archives of Pediatric and Adolescent Medicine 1997;151:761-767
What's in a label?
Labels such as 'distractible', 'hyperactive', 'reactive', or 'oppositional' can be replaced by corresponding labels such as 'perceptive', 'spirited', 'sensitive', or 'determined', according to Jenny Young-Loveridge, Senior Lecturer in Education Studies at Waikato University and mother of an ADHD child. She tells of a professional who wrote about her son: 'his intensity and inability to accept "no" are both highly positive attributes in many professional careers!'
Ref: Young-Loveridge, J 'A personal perspective on challenging behaviour: ADHD? Aust J Early Childhood (1997),22 (4):1-5 in the December 1997 themed edition which contains seven articles about ADHD including one by OITH editor Sue Dengate.
Reward and punishment
Researchers recently found that Ritalin may depress responsiveness to reward while elevating reactions to punishment. They suggest that this may make a return to normal functioning less probable.
Further reading: Arnett PA and others 'The effect of Ritalin on response to reward and punishment in children with ADHD' Child Study Journal (1996), 26(2),51-70
Classroom behaviour management
There is no doubt that a well managed, highly structured classroom is necessary for children with ADHD, according to Dr Alan Hudson of RMIT's Department of Psychology and Intellectual Disability Studies. Behavioural interventions have been found to be highly effective, although teacher praise and disapproval are not sufficiently strong reinforcers for ADHD children. Reinforcers such as stickers may still be insufficient. Teachers and parents can work together so that the child has access to home-based rewards such as television viewing or pocket money. Further reading: Hudson A 'Classroom instruction for children with ADHD' Aust J Early Childhood (1997),22 (4):22-27
Leave school with dignity
Teenagers who choose to leave school early should not be called 'drop outs' according to educator Dr CH Payne. Some overseas research shows that many make sensible decisions, pursuing what they want to do, and reserving the option of further education if and when they need it. As from July 1998, young people will have to be engaged in full-time study or training to be eligible for the Commonwealth Youth Allowance. This will probably mean more teenagers choosing to remain at or return to school. More flexible and varied courses should be developed to meet the needs of this new group of school students.
Payne, CH 'Youth Allowance', NT Board of Studies Newsletter (1998),1:3
Teacher comment
In the classroom
OITH has received feedback from a number of teachers concerned with increasing difficulties in the classroom. Experienced teachers who have good control of a class are often allocated more than their share of problem children until they too are struggling.
Dread going to school
'We don't know how to cope,' said one teacher with more than 20 years experience. 'Children weren't like this when I started teaching. In my first year as a teacher I had a transition class of 42 children and only one, maybe two, whom I would have considered to have any behaviour problems. I loved that class and I looked forward to going to work every day. Now I have a class of 30 of whom 10 have ADHD, learning disabilities or behaviour problems. I have to struggle with a child who spends his whole time running around the room and jumping on the tables. It's all I can do to get him to sit down, let alone to learn anything. He takes up half my time, the remaining children with problems get most of the rest, and the others have to make do with what's left. We haven't been trained to deal with children like this. We need more help. I feel overloaded all the time, I dread going to school and I'd like to get out of teaching.'
Education
Drop in standards
Echoing what so many teachers have told us, Bob Denahy from Hornsby NSW returned to the classroom after 15 years absence and was so shocked at what he found that he wrote a letter to the editor of The Australian newspaper, 30/11/96. An extract follows:
• The principal determinant in educational achievement is the home, not the school.
• Most teachers are devoted and work hard but the education system is a mess.
• There has been an astonishing drop in standards of student behaviour. Rare is the day when I return home not having been treated by students almost as scum. Recently I was pelted with stones as I left the school. In the 60s and 70s most classes had one or two recalcitrants but no student ever spoke or acted in the way that up to a third of the class does in the 90s in this country.
• Large numbers of schools are headed for chaos.
Spell checker
The Innovations Spell Checker offers spell checking on up to 80,000 words in English (not American), will search for missing letters, and the search mode includes phonetical checking. It also includes a calculator function. At $39 it is a lot cheaper than a word processor. Has anyone tried it? For more information, phone 1300 303 303 (order code is SISA).
Education
Reading together program
Research in the USA has shown that cross-age student tutoring systems work and have a strongly beneficial effect on the self-esteem and behaviour of older students. Thanks to special eduction teacher Jan Eupene for her account of an effective program.
Set up: We set up the equipment for the program in a large red box in a special place in the library so that readers and folders were available even if the coordinator was absent. This encouraged the year 7 students to run the program themselves, phoning if late and reorganising themselves if anyone was unable to attend.
The box contained
• sequenced readers which were unread (not used in classrooms) short and humorous
• a folder for each student containing a list of readers, a reading log and clues for assisting with reading.
There were also blackline masters of a letter to middle primary staff requesting identification of students who would benefit from the program, and a letter to year 7 students who had been identified as suitable tutors, outlining the program. Ongoing commitment was required.
Outcomes: Supportive methods to assist poor readers (such as pause, prompt, praise) were demonstrated and the program did need to be monitored but the Year 7 students ran the program. By using Silent Reading time no-one missed out on any class work. The Year 7 tutors were competent readers who continued to read widely. It was a pleasure to watch the rapport develop between the year 7 tutors and their reading partners. The reading partners took great pleasure in acknowledging their tutors in the school grounds.
Details of this program are available from OITH.
Environment
Steer children clear of solvents
Symptoms of exposure to solvents can include behavioural and learning symptoms such as poor short term memory, poor coordination, mood change and developmental disorders. Effects are dose-related and subclinical effects have been detected in workers who are not really ill. Some people have been affected by chronic, long-term exposure to levels smaller than those considered safe. Drinking alcohol can worsen the effects on the nervous system. Effects can be permanent. Treatment consists of avoidance of further exposure and treatment of symptoms with drugs such as antidepressants or stimulants. Occupations identified as high-risk for solvent toxicity include:
• mechanical and automotive engineering
• metal-part degreasing
• spray painting, painting and varnishing
• dry-cleaning
• hobbies such as crafts which use solvents
• solvent abuse
Further reading: White RF and Proctor SP 'Solvents and neurotoxicity' The Lancet, 349, 1997:1239-1243
Chemicals
What's new with head lice?
Head lice infestations are becoming more widespread as resistance develops to chemical treatments. Several readers have asked about non-toxic treatments.
Parents who are concerned about toxicity worry about warnings like the one on malathion which states that repeated minor exposure may have a cumulative poisoning effect, and that poisoning can occur through skin absorption.
In Belgium, researchers found that the only treatment with evidence of effectiveness was 1% permethrin cream, that lindane and natural pyrethrins were 'not sufficiently effective to justify their use' and that malathion and carbaryl 'needed more research'.
Parents are encouraged by health experts to minimise the use of pesticides to a single wash with the head lice treatment followed by intensive combing with a nit comb. Are there any other options? A new product containing cold-pressed oil from the Indian Neem tree which demonstrates 'no mammalian toxicity' is recommended by representatives of several schools. Canteen manager Lindy Scott says, 'Nimbin Central School introduced Liceguard early in 1996 when head lice were raging though the community. The reports I have received have been nothing but positive ... I recommend this product simply because it works where other, much more expensive products left a lot to be desired.' Ask for Liceguard at your local health food store or pharmacy, or phone/fax the national distributor on 02 6688 6150 Further reading: Vander Stichele RH and others Systematic review of clinical efficacy of topical treatments for head lice. British Medical Journal 1995;311:604-608
Adults
Marijuana and ADHD
Statistics suggest that 40% of ADHD children are predisposed to substance abuse during adolescence or adulthood. Of the ADHD population who are poly substance users, 67% smoke marijuana. Many behavioural changes are similar to those of ADHD: academic ability decreases; sniffles, colds, trivial illness, especially respiratory system; concentration levels decrease; depersonalisation; increased levels of anxiety; increased depression; reaction times slows; short term memory difficulties; a lack of interest in things previously enjoyed; increased impulsivity; space and time distortion; may increase appetite.
Research suggests:
* Two cannaboids found in marijuana affect chromosomal structure, causing genetic mutation.
* The gene affected is the same gene implicated in ADHD. Three studies have shown that females who were heavy smokers of marijuana prior to pregnancy produced children who demonstrated significantly disturbed behaviours compared to mothers who did not smoke marijuana - the behaviours described were ADHD.
* Smoking one joint a day, three days a week for six month results in changes in brain physiology that can be detected three to five years later.
* Marijuana decreases the amount of T-cells in the blood, weakening the immune system.
* There is a higher incidence of jaw, tongue and throat cancer among marijuana users.
* Long term users may develop drug-induced psychosis. Other than those who develop drug-induced psychosis and cancer, all other effects are fully reversible with total abstinence.
This is a summary of a talk (no references available) presented by John Anderson to ADDult NSW. You can obtain an audio tape of this talk for $8 from ADDult NSW, PO Box 472, Sutherland 2232.
Management
Beating ADD without drugs ?
The danger for children being given drugs to calm them down is that they come to believe that they do not have to take responsibility for their own actions, according to teacher Jean Robb and children's librarian Hilary Letts. For these children, the pride in learning self-control, self-discipline and new skills for new stages of life has been taken away. These authors recommend observing your children, paying attention to them, teaching them the consequences of their actions and social and other skills. You can teach an ADD child to be still:
1. Ask the child to lie down and see if he can be still by the time you count to ten - slowly. Lying still means not moving at all.
2. When the child moves, tell him which number he managed to get to before he moved and then try again and see if he can get further.
3. Take it in turns so sometimes he counts to ten while you lie still. This gives him a chance to see someone else being still.
Their book is full of suggestions which sound so simple you wonder if these authors really understand ADHD, but they claim to be successful, as with the mother of an Asperger's girl named Margaret who was cruel to animals. The mother was advised to explain to her daughter that a vulnerable animal needs her care and to think about the consequences of her actions. 'When Margaret's mother tried these things she found that they worked. She was able to talk to Margaret and Margaret was fascinated by the discussion.' If these suggestions really do work, they are worth a try. We'd love some feedback on this one, please.
'Creating kids who can concentrate: proven strategies for beating ADD without drugs' Jean Robb & Hilary Letts, published by Hodder & Stoughton, 1997.
Audio
Feedback
A mother with ADHD reports that the self-hypnosis cassettes I'm not hyper, angry or lazy and Clear calm and healthy have helped her to sleep better, become more organised and to start an exercise program. 'I feel much better because of it'. She plays I'm not hyper to her children after they are asleep. Her ADHD son's handwriting has improved and he is doing better at school. Most surprising is that she hears her daughter repeating phrases she could only have heard on the tape, such as 'you should treat other people the way you want to be treated yourself'. Available from Positive Input, phone 00000000000000
Sound familiar?
A 'twitchy' mind
'His mind was twitchy, like his fingers, which were always moving.'
- Ophelia Dahl describing her father in 'Roald Dahl Treasury'
Education
Laptops for learning disabilities
A two-year pilot study into the effects of using laptops with LD students has been underway at Robertson State School in Brisbane. In July 1995, Apple PowerBook laptops were issued to students aged 8-12 enrolled in the special education class. Teacher Larissa Lambalot reports that students who had previously avoided writing made rapid progress as writers. She explains that writing is like any other skill - you get better at it the more you do. With laptops, LD students who previously failed to complete writing assignments now experienced success and were motivated to keep writing. This is because laptops help the children to read what they have written, and they don't have to read the same piece of text five times and still make mistakes because they can cut and paste and change things around painlessly to produce work which looks so professional that they can be proud of it.
Some students have severe fine motor problems which affect their handwriting ability. These students are easily fatigued and focus on the letters rather than the ideas they want to impart. They benefit greatly from a laptop because they can write to longer and focus on what they want to write. Some of the Robertson students have shown substantial improvement in rate and volume of writing.
Teachers report that the students have developed confidence as writers. Written tasks are generally started without argument or groan. The rate of task completion has risen significantly. Negative self talk has all but disappeared and the students enthusiastically read their writing to others to gain feedback. It appears that parents also have seen the benefits, as three families have now purchased laptops for their children. - from Apple magazine August 1997
Diet
In the USA
Dietary management may not be recommended by ADHD experts in the USA, but that doesn't mean it isn't used. Twenty years after Dr Feingold first introduced his controversial theory about the connection between foods, behaviour and learning disabilities, Feingold Association president Jane Hersey has published a massive, well-indexed 473-page book about his diet. This is an entertaining read which makes you feel 'I'm not the only one' and provides a fascinating glimpse of life in the USA, although the dietary information and food lists seem out-of-date to us - food such as pineapple, dates, lemon juice, cola drinks, fast food hamburgers and amine-containing foods such as chocolate are still recommended. There is little emphasis on slow, cumulative build-up and delayed reactions which is perhaps why this association permits many foods that have been found to cause problems by Australian researchers. But there is plenty to learn, too. Years of product information research have unearthed some surprising practices by the food industry. Did you know that many cereal manufacturers add the antioxidants BHA and BHT to the inside of the bag containing the cereal which allows the chemical to slowly migrate into the contents? And examining highly publicised recent research, Hersey points out that while was sugar was not found to affect children's behaviour, the behaviour of all the children 'generally improved' on the 'essentially free of additives' experimental diets, a fact not mentioned in the press release of the Wolraich and others 1994 sugar study.
Behaviour ratings 'generally improved' on diets 'essentially free of additives'
If planning a trip the States, you will be pleased to hear there is an amusement park called Sesame Place in Langhorne, Pennsylvania, which tries to avoid 'unsavoury additives' and that Disney World contains a small grocery store but you should call the Guest Relations office before you leave home if wanting to eat in the restaurants. Be warned, the local ADD support groups called CHADD do not support families using diet. Hersey recounts how a Feingold speaker was denied permission to address a CHADD group because 'it might make the members feel guilty [that they weren't using diet]'.
From amusing accounts such as 'the war with my mother-in-law' and 'how I saved Fairfax country $62,296.00' by keeping a child out of an LD class, to the reports of epileptics affected by artificially-coloured Tegretol, the real strength here is in the stories. It is heartening news to read that young adults who have grown up on this diet find it easy to say no to recreational drugs because they like being in control. If you're into diet for the long haul, this is a useful reference which will give you solid support and remind you 'it's worth the effort' every time you dip into it.
'Why can't my child behave?' by Jane Hersey is available for $US27.00 including shipping from Pear Tree Press Inc, PO Box 30146, Alexandria, VA 22310, USA
Reader Comment
Coping with boredom
A successful ADHD adult tells us how to manage long boring meetings: doodling or word games like anagrams. ADHD people do better while doing two things at once. No need to ask these students to stop doodling. They are probably paying better attention because of it.
Education
Youth suicide blamed on school pressures
The Principal of a top Queensland private school has linked Australia's high youth suicide rate to inadequate education facilities for less academically gifted students. Nudgee College Principal Brother Harney said that the lack of vocational programs deprived four out of every 10 studedts of the opportunity to learn. 'They are gifted and talented in their own right but their skjills don't lie in physics classes, for example. They are graphic artists, skilful musicians, skilled at manual labour and construction, talented cooks and clothing desingers. Because vocational programmes cost more to run, governments have tended to ignore students in this area.' The hopelessness youth experience after failing school was one factor which contributed to Australia's record high youth suicide rate. Courier Mail 21/3/96
ADD Networking
WHAT'S HAPPENING AROUND AUSTRALIA
(and the world)Do you have some news which will prevent people in other states from reinventing the wheel?
WA
When the principal of East Maddington Primary School imposed a five-day suspension on 12 year old Robert Farmer for allegedly striking a female teacher, he could not have forseen the consequences. Robert's mother June Woods removed her other son, aged 8 from the school in protest and a bitter four-month battle ensued. On the day the boys finally returned to school, teachers cancelled classes and went on strike for three days because 'the boys were too dangerous'. After various offers from the education department including a behaviour mangement centre and private tutoring while at school, the boys were finally moved to another school. Allegations against the boys ranged from assault on other students and teachers to causing disruptions in class, but the lack of documented evidence highlights the need for principals to note any incidents and to follow suspension and exclusion procedures carefully. The West Australian
30/10/97, p10
QLD
A 10 year old boy who had been in the care of his maternal grandmother all his life was taken away from her by the Department of Family and Community Services on the order of a magistrate because she had refused to follow the recommendation of a doctor that he be placed on drugs to treat his condition, diagnosed as Attention Deficit Disorder. The grandmother had accepted the diagnosis, but did not want to use drugs. Instead she had hoped to minimise his disruptive, anti-social behaviour by means of a tightly controlled diet. The magistrate, describing the grandmother's conduct as "somewhat remiss' and noting that her approach had produced no significant improvement in the behaviour of the child, had ruled that this constituted neglect and placed the boy in the care and protection of the department. The grandmother appealed, and 'not surprisingly to many', won. The Courier Mail, Brisbane, 28/2/98, page 23. (The mother who sent this article commented that she was glad to have the opportunity to do a proper elimination diet because she finds a combination of Ritalin and diet produces best results).
USA
In Pennsylvania and many other states groups of parents, educators and business people are allowed to band together to create public schools to serve a segment of the population not being adequately served by the existing school system. Called charter schools, they are funded by tax money and must not be of a religious nature. Otherwise, community groups have free rein in creating a school, as long as they satisfy the criteria imposed by the state, such as a proven need for such a school, proven community support, access to a safe facility and an educationally sound program. Some charters in Pennsylvania accommodate children at risk, some are for special interests such as performing arts, technology, environment or Gardner's theory of multiple intelligences. Most are beneficial for ADD students in that they tend to have smaller class sizes (16-20 per class instead of 25-30), and often feature more hands-on learning and physical movement in the classroom instead of sitting at a desk the whole day. Currently planned is a Montessori-type program based on child-directed learning: the child's educational program is designed together by the teacher, parent, and child; each child would receive an Individual Educational Program (in public school, IEP's are only given to gifted students or special needs students); the teacher would function more as a facilitator to provide the resources for the child's independent study and the school would rely heavily on interested parent volunteers in the classroom. It might be a good answer for some of the learnin